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Wise use of health care services is the same for people with disabilities as it is for everyone. Having a disability is not the same as sickness and should not be confused with an automatic need for intensive health, medical, or nursing care. Medical treatment is recommended according to individual need and should not differ from common approaches to providing medical care.

However, it is recognized that people with disabilities can be at increased risk for chronic physical, developmental, behavioral or emotional conditions, and may require health and related services of a type or amount beyond what is required for the general population. Access to a quality practitioner that provides the best possible care, with a family-driven approach to service, is essential to supporting people with disabilities in the community. Unnecessary medicalization of disability and unfamiliarity of community resources can be barriers to receiving good care and may keep people with disabilities from reaching their full potential.

In a health care setting accessibility means:
taking action to help people understand their health options, making sure that approaches and equipment are appropriate for that person, approving services that will help people maintain independence.

      Health

      Maryland Resources

      American Academy of Pediatrics – Maryland Chapter
      This site includes educational information for patients and caregivers.

      Baltimore HealthCare Access
      No cost-information, resources, and services that families, providers, policy-makers and advocates can use to access HealthChoice (Maryland's Medical Managed Care Program; Maryland Children's Health Program (MCHP); Navigating managed care organizations (MCOs) and Resources for children with special health care needs, the uninsured, and other special needs populations.


      Care Notebook
      This is a great resource offered by the Department of Health and Mental Hygiene.  It is a full list of printable pages that help you organize all of your health care information.  A great idea for a family member with special health care needs!

      The Coordinating Center
      Provides care management for the Maryland Medicaid Model Waiver program (which provides a way to fund specialized services that children with complex medical needs must have in order to be fully included at home and in their communities), Rare and Expensive Care Management program (REM), CHAMPUS, private managed cared organizations and Maryland's Infant and Toddler program. They also provide training and consultation, managed care education, medical legal supports and life care planning to assist families in all aspects of special health care needs and disabilities.


      Family Health Administration
       
      The Family Health Administration (FHA) works to protect, promote and improve the health and well-being of all Marylanders and their families through community-based public health efforts, giving special attention to at-risk and vulnerable populations.

      Maryland Family Voices

      This project of the Parents’ Place of Maryland is a statewide grassroots network of families and friends speaking on behalf of children and youth with special health care needs and providing support, advocacy, information and resources about health care systems and related resources in Maryland.

      Health Choice
      The Health Choice program is Maryland's statewide Managed Care Program for low- income citizens, and is a part of the Department of Health and Mental Hygiene. Information is provided on program benefits, eligibility requirements and application procedures.


      Kennedy Krieger Institute
      The Kennedy Krieger Institute provides services for children with special health care needs.


      Maryland Children’s Health Program (MCHP)

      MCHP uses federal and state funds to provide health care coverage to low-income children up to age 19 and pregnant women of any age.

      Healthy Teeth Healthy Kids

      Provides list of dentists in MD's Healthy Smiles Dental Program, the state's Medicaid program for children.


      The Maryland Department of Human Resources
      Provides information on temporary economic assistance and protection services for vulnerable children and adults.


      Maryland Family Health Administration’s Office of Oral Health

      The purpose of the guide is to inform and assist children, adults, and patients with special health needs, caregivers, consumers and government agencies in finding affordable and appropriate dental care services in Maryland and the immediate regions.

      The Maryland Insurance Administration
      (MIA) is an independent State agency that regulates Maryland's insurance industry and protects consumers by ensuring that insurance companies and health plans act in accordance with insurance laws.

      The Mt. Washington Pediatric Hospital
      Mt. Washington Pediatric Hospital Services include evaluation and testing, diagnosis, family conferencing, education, treatment, consultation with schools and physicians, and follow-up services.

      Maryland Local Department of Social Services

      Maryland Health Departments by County

      Medicaid Matters! Maryland
      MedicaidMatters!MD (MM!MD), is a statewide consumer-focused coalition which brings together a diverse set of over 70 local, regional and statewide organizations representing persons with disabilities, at risk children, vulnerable seniors and the low income community.

      WIC
      Maryland Women's Infants and Children Program (WIC) is a federally funded program that provides pregnant woman, new mothers and infants and children under the age of five with supplemental food and nutrition counseling.


      National Resources


      Affordable Care Act

      American Academy of Pediatrics

      The American Academy of Pediatrics Website provides a variety of information to families on the care of infants and children. Maryland Chapter of the American Academy of Pediatrics:

      Brave Kids
      Resources and networking opportunities to help children with chronic, life-threatening illnesses or disabilities. Nationwide directory for health care resources.

      Family Doctor - American Academy of Physicians
      Fact sheets on more than 500 health related issues.

      The Centers for Medicare & Medicaid Services
      This site offers a mass amount of information regarding Medicare and Medicaid.

      HealthCare.gov – Implementation Center
      This site offers a list of brochures that explain the Affordable Care Act, the new Health Care Law and other important information regarding Medicare, prescription drugs, etc.

      HealthCareCoach.com
      This site is packed with facts and tips on everything from health insurance to patient care.

      HRTW (Healthy and Ready to Work) National Resource Center 
      This site provides information and connections to health and transition expertise nationwide.

      Healthy Transitions
      This site provides information for moving from pediatric to adult healthcare.

      Informed Consent for Healthcare
      Promoting quality healthcare for people with disabilities through education about decision-making and true informed consent.

      MCARE
      MCARE is the National Clearinghouse on Managed Care and Long-Term Supports and Services for People with Developmental Disabilities and Their Families. The MCARE website seeks to provide the most current information available on managed care, long-term services and supports, self-determination, and other related areas. MCARE will provide the latest news articles, upcoming conferences and events, government documents, research and policy papers, and individual perspectives.

      National Center for Medical Home Implementation
      Provides support to physicians, families and medical providers and non-medical providers who care for children with special needs so that they have access to medical care at home.

      The National Center on Physical Activity and Disability

      Navigating Medicare and Medicaid: Resource Guides for People with Disabilities, Their Families, and Their Advocates

      Vision USA
      Routine eye care for low-income families. Provides basic eye health and vision care services free of charge.

       


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