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Sometimes it is nice to connect with a family that has had similar experiences or an organization that is specifically focused on issues that are affecting your family. There are many organizations that can provide information, resources and support related to specific disability labels and issues. The following is a list of organizations that support families and individuals with disabilities.

 

Disability Specific
Acquired Immune Deficiency Syndrome (AIDS)
Anxiety Disorders
Asthma & Allergies
Attention Deficit Hyperactivity Disorder (ADHD) & Attention Deficit Disorder ADD
Autism, Asperger Syndrome & Pervasive Developmental Disorder (PDD)
Bereavement
Blind/Partially Sighted
Cerebral Palsy
Cystic Fibrosis
Deaf and Deaf-Blind
Developmental Disabilities
Down Syndrome
Emotional/Behavioral Disturbances and Mental Illness
Feeding Disorders
General Maryland Information
Hearing Impaired
Juvenile Diabetes/Diabetes
Kidney Disease
Learning Disabilities
Military Families
Muscular Dystrophy
Multiple Sclerosis
National Disabled Students Union (NDSU)
Parent to Parent Groups
Rare and Chronic Disorders
Seizure Disorders
Sickle Cell Disease
Speech and Language
Spina Bifida
Stroke
Tourette Syndrome
Traumatic Brain Injury


Maryland Resources


Anxiety Disorders

Anxiety Disorders Association of America
Provides local support group information as well as referrals to local practitioners

Asthma & Allergies

Asthma & Allergy Foundation of America, Maryland Chapter
Provides local support group information


Attention Deficit Hyperactivity Disorder (ADHD) & Attention Deficit Disorder (ADD)

Behavior Consultation Clinic

CHADDChildren and Adults with Attention-Deficit/Hyperactive Disorder

Chesapeake ADHD Center of Maryland

The CenterA Resource for Women and Girls with AD/HD

One A.D.D. Place
A virtual neighborhood consolidating in ONE PLACE information and resources relating to Attention Deficit Disorder (A.D.D.), AD/HD and Learning Disorders (LD). This site has a store, a library, professional services, and books/tapes/products.


Autism, Asperger Syndrome & Pervasive Developmental Disorder (PDD)

Ahead with Autism

Autism Society of America Local Chapters


AAACC -Autism Aspergers Association of Calvert County

ASPIRES
This is an on-line resource for spouses and family members of adults diagnosed or suspected of being on the Autism Spectrum.

Autistic Children's Support Group of Worcester County

Autism Research at the NICHD
From the AUCDigest: A series of fact sheets describing the latest research findings on autism is now available from the National Institute of Child Health and Human Development (NICHD). Six fact sheets are available and include topics such as: an overview of autism, indicators, treatments, commonly asked questions and answers for Health Care Professionals, current research on the genetic bases of autism, the purported link between autism and vaccines, Rett Syndrome, and the Collaborative Programs of Excellence in Autism (CPEAs).

Autism Online
This site connects parents of newly diagnosed children with autism and professionals working with these children with critical resources, support and research information in their own language.

Autism Speaks

Baltimore - Chesapeake Chapter of the Autism Society of America

CDC Online Autism Information

Community Services for Autistic Adults and Children (CSAAC)

Different Roads To Learning
A catalog featuring teaching materials, skill-building toys, books, videos and other products for children with autism and other developmental challenges.

Early Learning
Provides a CD-ROM product to produce thousands of color images on flash cards covering a wide variety of categories for use in home or school settings.

Families of Children with Autism Support Group (FOCAS)

Families for Intensive Autism Treatment (FIAT)

Jewish Social Services of Metropolitan Washington

Kennedy Krieger Institute

Maryland Asperger Advocacy and Support Group

Maryland Autism Waiver

Anne Arundel County Asperger Support Group

MCASA (Montgomery County Maryland Chapter of the Autism Society of America)

Organization for Autism Research (OAR)

O.A.S.I.S (Online Asperger Syndrome Information and Support)

 

Pathfinders for Autism

POAC (Parents of Autistic Children) of Central Maryland


Bereavement

Stella Maris Hospice

Hospice of Maryland

Mercy Medical Center office of Pastoral Care

St. Agnes Hospice Center for Bereavement Care

Compassionate Friends


Bipolar Disorder

Child and Adolescent Bipolar Foundation
The Child and Adolescent Bipolar Foundation (CABF) is a parent-led, not-for-profit, web-based membership organization. The on-line community includes parents, researchers, medical doctors, neuroscientists, social workers, therapists, civic leaders, teachers, and others.

The Bipolar Child
Get some general information on early-onset bipolar disorder. The authors will also be updating this area regularly with new articles that you can receive via email.


Blind/Partially Sighted

American Action Fund for Blind Children and Adults
This service agency specializes in providing help that is not readily available from government programs or existing service systems. Services are planned especially to meet the needs of blind children, the elderly blind and the deaf-blind. Outreach volunteers throughout the U.S. provide services to people in their home localities.

Maryland School for the Blind

National Federation of the Blind

V-LINC
Creates technological solutions to improve the independence and quality of life for individuals of all ages with disabilities in Maryland.

Visual Impairment Guide
This site contains information topics pertaining to parenting and teaching a child with visual impairments.


Brain Injury

Brain Injury Association of Maryland
The Brain Injury Association of Maryland provides a variety of services including an information line, a list of available programs, and advocacy services.

Traumatic Brain Injury in the United States: Assessing Outcomes in Children

This section summarizes existing measures for assessing outcomes and describes their
applicability to studies of TBI.

Cerebral Palsy

Hemiplegia & Hemiplegic Cerebral Palsy

Kennedy Krieger Institute
Kennedy Krieger Institute is a facility dedicated to improving the lives of children, adolescents and young adults through comprehensive patient care, education and research. KKI provides diagnosis, evaluation, education, and treatment information for children with cerebral palsy.

United Cerebral Palsy


Cystic Fibrosis

Cystic Fibrosis Foundation


Deaf and Deaf-Blind

American Association of 4-the Deaf-Blind
(AADB) is a national consumer advocacy organization for people who have combined hearing and vision impairments.

American Speech-Language-Hearing Association

Connections Beyond Sight and Sound
This project delivers technical assistance and training throughout Maryland for children with deaf-blindness.

DB-LINK
National Information Clearinghouse On Children Who Are Deaf-Blind (DB-LINK) is a federally funded information clearinghouse focused on identifying, coordinating, and disseminating information related to children (0 - 21) who are deaf-blind.

Helen Keller National Center
The Helen Keller National Center provides a training facility as well a variety field services throughout the country for individuals who are deaf and blind.

Maryland Governor's Office of the Deaf and Hard of Hearing

Maryland Relay

With Maryland Relay, people who are Deaf, Hard of Hearing, DeafBlind or Speech Disabled can easily communicate through TTY (text telephone) with anyone using a standard phone!

Maryland School for Deaf-Blind

Metropolitan Washington Association of the Deaf-Blind [MWADB]
MWADB is a social, nonprofit organization of, for, and by deaf-blind people. Its purpose is to encourage, recognize and promote the needs of deaf-blind people in the metropolitan Washington, DC area in the areas of economic security, social equality, access to community resources, and privileges as citizens.

The National Association of the Deaf
The National Association of the Deaf provides a variety of programs through their affiliates as well as information and advocacy for individuals who are deaf and hard of hearing.

National Family Association for Deaf-Blind (NFADB)
The National Family Association for Deaf-Blind (NFADB) is a national organization that advocates for all persons who are deaf-blind, supports national policy to benefit people who are deaf-blind, encourages the founding and strengthening of family organizations in each state and collaborates with professionals who work with persons who are deaf-blind.


Developmental Disabilities

The Arc of Maryland
A full list of local chapters statewide.

Developmental Delay Resources (DDR)

Family Service Foundation

Office of Consumer Advocates, Inc.


Down Syndrome

Angels Forever Up

Anne Arundel Parents of Children with Down Syndrome

Chesapeake Down Syndrome Parent Support Group

Down Syndrome: Health Issues

Down Syndrome Resource Network of Howard County
(410)730-0638

Down Syndrome Education International

Down Syndrome Network of Montgomery County

Down Syndrome Education Online

Down Syndrome on the Internet

Down Syndrome Research Foundation

Eastern Shore Down Syndrome Parent Support Group
(410)860-9496

Family Resource Information Education Network for Down Syndrome (FRIENDS)
Located in Frederick County

National Down Syndrome Congress
A national advocacy organization for Down syndrome which provides leadership in all areas of concern related to persons with Down syndrome.

National Down Syndrome Society

Parents of Children with Down Syndrome (PODS) of Prince George’s County
(202)412-7488

The Official Parent’s Sourcebook on Down Syndrome


Epilepsy

Epilepsy Advocate

Epilepsy Foundation of America
Provides information and resources to people with epilepsy, their families, researchers, educators, and caregivers in order to enhance quality of life. Just enter your zip code and find a local Foundation near you.


General Support and Maryland Information

Abilities Network Family Empowerment Network

Advocates for Children and Youth in Maryland
Focuses on issues related to all Maryland children. They provide researched based solutions in the areas of child welfare, early childhood, education, health, juvenile justice, economic well being, and after school issues.

Inclusion Research Institute
The primary mission of IRI is to research, develop and disseminate innovations that enable persons of all ages, including individuals with disabilities or other disadvantages, to be independent, productive and included in schools, communities, and places of employment.

March of Dimes
Funds programs including the areas of research, community services, education and advocacy.

Maryland Association of Resources for Families and Youth (MARFY)

MARFY provides training, conferences, newsletters, and daylong seminars throughout the state.

Maryland Disabilities Law Center
Advocates for the interests of people with disabilities in Maryland. Provides low-cost legal assistance.

Maryland State Department of Education Family Support Services
The Family Support Network offers support to families receiving early intervention services. In addition to providing information about available programs and services, the Family Support Network helps families by: linking them to other families that may share similar experiences; offering specialized workshops and seminars; and establishing Family-to-Family Support Networks to help meet needs in local communities.

Parents Place of Maryland
A statewide, parent-directed resource center whose sole purpose is to enhance the ability of all individuals with disabilities to participate as fully as possible in the home, school and community. There are regional offices to serve the needs of parents in different locations throughout the state of Maryland.

The Resource Network
A Project of Kennedy Krieger Institute
This site shares resources on developmental disabilities throughout the state of Maryland, compiling educational information to increase knowledge for families, children and youths with developmental disabilities, as well as professionals.


Today's Caregiver Magazine
Caregiver Media Group is a leading provider of information, support and guidance for family and professional caregivers. Web site features topic specific newsletters, online discussion lists, back issue articles of Today's Caregiver Magazine, chat rooms and an online store which is currently in development. Caregiver Media Group and all of its products are developed for caregivers, about caregivers and by caregivers.


Genetic Disabilities/Rare Disorders/Diseases

Angelman Syndrome Foundation, Inc.
The Foundation can put you in touch with Local Contacts within your region. Regional Representatives are also available to answer questions, and are coordinators of social gatherings and mini-conferences.

11th Chromosone Abnormalities
The mission of this web site is to provide support and organizational efforts for the parents, as well as friends and family, of all children with 11th chromosome abnormalities, including deletions (monosomy), duplications (trisomy) and translocations.

FRAXA Research Foundation
A nonprofit charity run by parents of children with fragile X syndrome. FRAXA's goal is to accelerate research aimed at the treatment and cure of fragile X, by direct funding of promising research projects and by raising awareness. Offers a variety of publications and a CD-Rom providing facts, educational strategies and medications to treat this disorder.

The Genetic Alliance
The Genetic Alliance provides information regarding genetic conditions.

International Klinefelter Syndrome Support Organization

International Rett Syndrome Association

Maryland Fragile X Resource Group
The Maryland Fragile X Resource Group is a community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. We are a very active group providing mutual support and education, promoting awareness of Fragile X and actively participating in funding research on Fragile X.

Mid-Atlantic Velo-Cardio-Facial Syndrome Support Group

The National Fragile X Foundation
Nonprofit organization dedicated to increasing awareness and education about this disorder, supporting research, assisting families and encouraging collaboration among professional involved with fragile X syndrome.


The National Organization for Rare Disorders
Provides a variety of information regarding prevention, treatment and cure of rare diseases.

National MPS Society (mucoplysaccharidoses)

National Tay-Sachs and Allied Disease Association, Inc.

Noonan Syndrome Support Group, Inc.

Prader-Willi Syndrome Association

Sillwee Wobbert Picture Book Series
Picture books about children's medical conditions that help both kids and adults ask more questions and learn more about their health. The Sillwee Wobbert book series represent new and uplifting stories that inspire more education with loved ones and friends about illnesses, and improves the communication with medical personnel

United Leukodystrophy Foundation

The United Mitochondrial Disease Foundation


Hearing Impaired

Hearing Loss Association of America
A local and national organization that provides support and education to people who have a hearing loss.

Hearing Loss Association of Greater Baltimore


Hydrocephalus

Hydrocephalus Association
The Hydrocephalus Association provides personal support for families and individuals, education, and advocacy.


Juvenile Diabetes/Diabetes

Juvenile Diabetes Research Foundation International – Maryland Chapter

Diabetes Insipidus Foundation, Inc.


Kidney Disease

National Kidney Foundation of Maryland


Learning Disabilities

The Feingold Association of the United States
Promotes dietary practices for better behavior and learning.

Learning Disability Association of Maryland
The Learning Disability Association of Maryland provides families and individuals with information regarding learning disabilities, as well as a listing of local chapters.

LDonline
An interactive website for families of children with learning disabilities.

National Center for Learning Disabilities

An online guide to essential information about learning disabilities, early literacy and learning resources, support for adolescents and adults with learning disabilities, public policy and advocacy tools.

Parents Helping Parents


Mental Health

Anxiety Support

Anxiety Disorders Association of America (ADAA)

Black Mental Health Alliance
The guiding principles of the Black Mental Health Alliance for Education and Consultation, Inc. (BMHA) are concern for others, integrity, respect for diversity and empowerment. BMHA promotes appropriate mental health care, service delivery and theoretical understanding of all the mental health programs.

Child & Adolescent Bipolar Foundation

Depression and Bipolar Support Alliance

Depression and Related Affective Disorders Association (DRADA)

Federation of Families for Childrens Mental Health
A National parent-run organization focused on the needs of children and youth with emotional, behavioral or mental disorders and their families.

Maryland Coalition of Families for Children's Mental Health
A grassroots coalition of family and advocacy organizations dedicated to: improving services for children with mental health needs and their families and building a network of information and support for families across Maryland.

Mental Health Association of Maryland
Provides advocacy, education, research and service to the state of Maryland regarding Mental Illnesses.

The National Alliance for the Mentally Ill
An advocacy organization that provides information on a variety of Mental Illnesses.

The Obsessive-Compulsive Foundation, Inc.

On Our Own


Military Families

Exceptional Family Member Program

Military K-12 Partners


Muscular Dystrophy

Muscular Dystrophy Association


Multiple Sclerosis

National Multiple Sclerosis Society Maryland Chapter


National Disabled Students Union

National Disabled Students Union (NDSU)


Parent to Parent

MUMS, National Parent-to-Parent Network

Parent to Parent Network

Seizure Disorders

Abilities Network

Epilepsy Foundation

Sickle Cell Disease

Sickle Cell Disease Association

Speech and Language

American Speech-Language-Hearing Association

Metropolitan Stuttering Support Group

Spina Bifida

Spina Bifida Association


Spinal Cord Injury


National Spinal Cord Injury Association
The National Spinal Cord Injury Association is the nation's oldest and largest civilian organization dedicated to helping the hundreds of thousands of Americans suffering the catastrophic results of spinal cord injury and disease.


Stroke

American Heart Association

American Stroke Foundation


Tourette Syndrome

Tourette Syndrome Association

Tourette Syndrome "Plus"
You will find articles and files relating to school-related issues in the Education section of the site. And don't miss the general Behavior section, where you'll find topics of concerns to parents and teachers of children with these childhood-onset conditions or disorders.


Traumatic Brain Injury

Brain Injury Association of Maryland

Traumatic Brain Injury Lawyer
They offer a list of Brain Injury Associations for the entire state.


Tuberous Sclerosis

Tuberous Sclerosis Alliance
This nonprofit organization provides support to families who are affected by Tuberous Sclerosis.


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