Disability Specific Acquired Immune Deficiency Syndrome (AIDS) Anxiety Disorders Asthma & Allergies Attention Deficit Hyperactivity Disorder (ADHD) & Attention Deficit Disorder ADD Autism, Asperger Syndrome & Pervasive Developmental Disorder (PDD) Bereavement Blind/Partially Sighted Cerebral Palsy Cystic Fibrosis Deaf and Deaf-Blind Developmental Disabilities Down Syndrome Emotional/Behavioral Disturbances and Mental Illness Feeding Disorders General Maryland Information Hearing Impaired Juvenile Diabetes/Diabetes Kidney Disease Learning Disabilities Military Families Muscular Dystrophy Multiple Sclerosis National Disabled Students Union (NDSU) Parent to Parent Groups Rare and Chronic Disorders Seizure Disorders Sickle Cell Disease Speech and Language Spina Bifida Stroke Tourette Syndrome Traumatic Brain Injury
Maryland Resources
Anxiety DisordersAnxiety Disorders Association of America Provides local support group information as well as referrals to local practitioners
Asthma & Allergies Asthma & Allergy Foundation of America, Maryland Chapter Provides local support group information
Attention Deficit Hyperactivity Disorder (ADHD) & Attention Deficit Disorder (ADD) Behavior Consultation Clinic CHADD – Children and Adults with Attention-Deficit/Hyperactive Disorder Chesapeake ADHD Center of Maryland The Center – A Resource for Women and Girls with AD/HD One A.D.D. Place A virtual neighborhood consolidating in ONE PLACE information and resources relating to Attention Deficit Disorder (A.D.D.), AD/HD and Learning Disorders (LD). This site has a store, a library, professional services, and books/tapes/products.
Autism, Asperger Syndrome & Pervasive Developmental Disorder (PDD)
Ahead with Autism
Autism Society of America Local Chapters
AAACC -Autism Aspergers Association of Calvert County ASPIRES This is an on-line resource for spouses and family members of adults diagnosed or suspected of being on the Autism Spectrum.
Autistic Children's Support Group of Worcester County Autism Research at the NICHD From the AUCDigest: A series of fact sheets describing the latest research findings on autism is now available from the National Institute of Child Health and Human Development (NICHD). Six fact sheets are available and include topics such as: an overview of autism, indicators, treatments, commonly asked questions and answers for Health Care Professionals, current research on the genetic bases of autism, the purported link between autism and vaccines, Rett Syndrome, and the Collaborative Programs of Excellence in Autism (CPEAs). Autism Online This site connects parents of newly diagnosed children with autism and professionals working with these children with critical resources, support and research information in their own language. Autism Speaks
Baltimore - Chesapeake Chapter of the Autism Society of America CDC Online Autism Information Community Services for Autistic Adults and Children (CSAAC) Different Roads To Learning A catalog featuring teaching materials, skill-building toys, books, videos and other products for children with autism and other developmental challenges. Early Learning Provides a CD-ROM product to produce thousands of color images on flash cards covering a wide variety of categories for use in home or school settings.
Families of Children with Autism Support Group (FOCAS)
Families for Intensive Autism Treatment (FIAT)
Jewish Social Services of Metropolitan Washington Kennedy Krieger Institute
Maryland Asperger Advocacy and Support Group Maryland Autism Waiver
Anne Arundel County Asperger Support Group MCASA (Montgomery County Maryland Chapter of the Autism Society of America)
Organization for Autism Research (OAR) O.A.S.I.S (Online Asperger Syndrome Information and Support) Pathfinders for Autism POAC (Parents of Autistic Children) of Central Maryland
Bereavement Stella Maris Hospice
Hospice of Maryland
Mercy Medical Center office of Pastoral Care
St. Agnes Hospice Center for Bereavement Care
Compassionate Friends Bipolar Disorder
Child and Adolescent Bipolar Foundation The Child and Adolescent Bipolar Foundation (CABF) is a parent-led, not-for-profit, web-based membership organization. The on-line community includes parents, researchers, medical doctors, neuroscientists, social workers, therapists, civic leaders, teachers, and others.
The Bipolar Child Get some general information on early-onset bipolar disorder. The authors will also be updating this area regularly with new articles that you can receive via email. Blind/Partially Sighted
American Action Fund for Blind Children and Adults This service agency specializes in providing help that is not readily available from government programs or existing service systems. Services are planned especially to meet the needs of blind children, the elderly blind and the deaf-blind. Outreach volunteers throughout the U.S. provide services to people in their home localities. Maryland School for the Blind
National Federation of the Blind V-LINC Creates technological solutions to improve the independence and quality of life for individuals of all ages with disabilities in Maryland. Visual Impairment Guide This site contains information topics pertaining to parenting and teaching a child with visual impairments. Brain Injury Brain Injury Association of Maryland The Brain Injury Association of Maryland provides a variety of services including an information line, a list of available programs, and advocacy services.
Traumatic Brain Injury in the United States: Assessing Outcomes in Children This section summarizes existing measures for assessing outcomes and describes their applicability to studies of TBI. Cerebral Palsy
Hemiplegia & Hemiplegic Cerebral Palsy Kennedy Krieger Institute Kennedy Krieger Institute is a facility dedicated to improving the lives of children, adolescents and young adults through comprehensive patient care, education and research. KKI provides diagnosis, evaluation, education, and treatment information for children with cerebral palsy. United Cerebral Palsy
Cystic Fibrosis
Cystic Fibrosis Foundation
Deaf and Deaf-Blind
American Association of 4-the Deaf-Blind (AADB) is a national consumer advocacy organization for people who have combined hearing and vision impairments.American Speech-Language-Hearing Association Connections Beyond Sight and Sound This project delivers technical assistance and training throughout Maryland for children with deaf-blindness. DB-LINK National Information Clearinghouse On Children Who Are Deaf-Blind (DB-LINK) is a federally funded information clearinghouse focused on identifying, coordinating, and disseminating information related to children (0 - 21) who are deaf-blind.
Helen Keller National Center The Helen Keller National Center provides a training facility as well a variety field services throughout the country for individuals who are deaf and blind. Maryland Governor's Office of the Deaf and Hard of Hearing Maryland Relay With Maryland Relay, people who are Deaf, Hard of Hearing, DeafBlind or Speech Disabled can easily communicate through TTY (text telephone) with anyone using a standard phone!
Maryland School for Deaf-Blind Metropolitan Washington Association of the Deaf-Blind [MWADB] MWADB is a social, nonprofit organization of, for, and by deaf-blind people. Its purpose is to encourage, recognize and promote the needs of deaf-blind people in the metropolitan Washington, DC area in the areas of economic security, social equality, access to community resources, and privileges as citizens. The National Association of the Deaf The National Association of the Deaf provides a variety of programs through their affiliates as well as information and advocacy for individuals who are deaf and hard of hearing.
National Family Association for Deaf-Blind (NFADB) The National Family Association for Deaf-Blind (NFADB) is a national organization that advocates for all persons who are deaf-blind, supports national policy to benefit people who are deaf-blind, encourages the founding and strengthening of family organizations in each state and collaborates with professionals who work with persons who are deaf-blind.
Developmental Disabilities The Arc of Maryland A full list of local chapters statewide.
Developmental Delay Resources (DDR)
Family Service Foundation
Office of Consumer Advocates, Inc. Down Syndrome
Angels Forever Up Anne Arundel Parents of Children with Down Syndrome
Chesapeake Down Syndrome Parent Support Group
Down Syndrome: Health Issues
Down Syndrome Resource Network of Howard County (410)730-0638 Down Syndrome Education International
Down Syndrome Network of Montgomery County Down Syndrome Education Online Down Syndrome on the Internet Down Syndrome Research Foundation
Eastern Shore Down Syndrome Parent Support Group (410)860-9496
Family Resource Information Education Network for Down Syndrome (FRIENDS) Located in Frederick County National Down Syndrome Congress A national advocacy organization for Down syndrome which provides leadership in all areas of concern related to persons with Down syndrome. National Down Syndrome Society
Parents of Children with Down Syndrome (PODS) of Prince George’s County (202)412-7488 The Official Parent’s Sourcebook on Down Syndrome
Epilepsy
Epilepsy Advocate Epilepsy Foundation of America Provides information and resources to people with epilepsy, their families, researchers, educators, and caregivers in order to enhance quality of life. Just enter your zip code and find a local Foundation near you. General Support and Maryland Information Abilities Network Family Empowerment Network Advocates for Children and Youth in Maryland Focuses on issues related to all Maryland children. They provide researched based solutions in the areas of child welfare, early childhood, education, health, juvenile justice, economic well being, and after school issues.
Inclusion Research Institute The primary mission of IRI is to research, develop and disseminate innovations that enable persons of all ages, including individuals with disabilities or other disadvantages, to be independent, productive and included in schools, communities, and places of employment.
March of Dimes Funds programs including the areas of research, community services, education and advocacy.
Maryland Association of Resources for Families and Youth (MARFY) MARFY provides training, conferences, newsletters, and daylong seminars throughout the state. Maryland Disabilities Law Center Advocates for the interests of people with disabilities in Maryland. Provides low-cost legal assistance. Maryland State Department of Education Family Support Services The Family Support Network offers support to families receiving early intervention services. In addition to providing information about available programs and services, the Family Support Network helps families by: linking them to other families that may share similar experiences; offering specialized workshops and seminars; and establishing Family-to-Family Support Networks to help meet needs in local communities. Parents Place of Maryland A statewide, parent-directed resource center whose sole purpose is to enhance the ability of all individuals with disabilities to participate as fully as possible in the home, school and community. There are regional offices to serve the needs of parents in different locations throughout the state of Maryland. The Resource Network A Project of Kennedy Krieger Institute This site shares resources on developmental disabilities throughout the state of Maryland, compiling educational information to increase knowledge for families, children and youths with developmental disabilities, as well as professionals.
Today's Caregiver Magazine Caregiver Media Group is a leading provider of information, support and guidance for family and professional caregivers. Web site features topic specific newsletters, online discussion lists, back issue articles of Today's Caregiver Magazine, chat rooms and an online store which is currently in development. Caregiver Media Group and all of its products are developed for caregivers, about caregivers and by caregivers. Genetic Disabilities/Rare Disorders/Diseases
Angelman Syndrome Foundation, Inc. The Foundation can put you in touch with Local Contacts within your region. Regional Representatives are also available to answer questions, and are coordinators of social gatherings and mini-conferences.
11th Chromosone Abnormalities The mission of this web site is to provide support and organizational efforts for the parents, as well as friends and family, of all children with 11th chromosome abnormalities, including deletions (monosomy), duplications (trisomy) and translocations.
FRAXA Research Foundation A nonprofit charity run by parents of children with fragile X syndrome. FRAXA's goal is to accelerate research aimed at the treatment and cure of fragile X, by direct funding of promising research projects and by raising awareness. Offers a variety of publications and a CD-Rom providing facts, educational strategies and medications to treat this disorder.
The Genetic Alliance The Genetic Alliance provides information regarding genetic conditions. International Klinefelter Syndrome Support Organization
International Rett Syndrome Association
Maryland Fragile X Resource Group The Maryland Fragile X Resource Group is a community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. We are a very active group providing mutual support and education, promoting awareness of Fragile X and actively participating in funding research on Fragile X. Mid-Atlantic Velo-Cardio-Facial Syndrome Support Group
The National Fragile X Foundation Nonprofit organization dedicated to increasing awareness and education about this disorder, supporting research, assisting families and encouraging collaboration among professional involved with fragile X syndrome.
The National Organization for Rare Disorders Provides a variety of information regarding prevention, treatment and cure of rare diseases. National MPS Society (mucoplysaccharidoses)
National Tay-Sachs and Allied Disease Association, Inc.
Noonan Syndrome Support Group, Inc. Prader-Willi Syndrome Association
Sillwee Wobbert Picture Book Series Picture books about children's medical conditions that help both kids and adults ask more questions and learn more about their health. The Sillwee Wobbert book series represent new and uplifting stories that inspire more education with loved ones and friends about illnesses, and improves the communication with medical personnel United Leukodystrophy Foundation
The United Mitochondrial Disease Foundation Hearing Impaired
Hearing Loss Association of America A local and national organization that provides support and education to people who have a hearing loss.
Hearing Loss Association of Greater Baltimore
Hydrocephalus Hydrocephalus Association The Hydrocephalus Association provides personal support for families and individuals, education, and advocacy. Juvenile Diabetes/Diabetes Juvenile Diabetes Research Foundation International – Maryland Chapter
Diabetes Insipidus Foundation, Inc.
Kidney Disease National Kidney Foundation of Maryland
Learning Disabilities The Feingold Association of the United States Promotes dietary practices for better behavior and learning.
Learning Disability Association of Maryland The Learning Disability Association of Maryland provides families and individuals with information regarding learning disabilities, as well as a listing of local chapters.
LDonline An interactive website for families of children with learning disabilities.
National Center for Learning Disabilities An online guide to essential information about learning disabilities, early literacy and learning resources, support for adolescents and adults with learning disabilities, public policy and advocacy tools.
Parents Helping Parents
Mental Health Anxiety SupportAnxiety Disorders Association of America (ADAA) Black Mental Health Alliance The guiding principles of the Black Mental Health Alliance for Education and Consultation, Inc. (BMHA) are concern for others, integrity, respect for diversity and empowerment. BMHA promotes appropriate mental health care, service delivery and theoretical understanding of all the mental health programs. Child & Adolescent Bipolar Foundation
Depression and Bipolar Support Alliance
Depression and Related Affective Disorders Association (DRADA) Federation of Families for Childrens Mental Health A National parent-run organization focused on the needs of children and youth with emotional, behavioral or mental disorders and their families.
Maryland Coalition of Families for Children's Mental Health A grassroots coalition of family and advocacy organizations dedicated to: improving services for children with mental health needs and their families and building a network of information and support for families across Maryland. Mental Health Association of Maryland Provides advocacy, education, research and service to the state of Maryland regarding Mental Illnesses. The National Alliance for the Mentally Ill An advocacy organization that provides information on a variety of Mental Illnesses. The Obsessive-Compulsive Foundation, Inc.
On Our Own Military Families
Exceptional Family Member Program
Military K-12 Partners
Muscular Dystrophy Muscular Dystrophy Association
Multiple Sclerosis
National Multiple Sclerosis Society Maryland Chapter National Disabled Students Union National Disabled Students Union (NDSU)
Parent to Parent MUMS, National Parent-to-Parent Network
Parent to Parent Network
Seizure Disorders Abilities Network
Epilepsy Foundation
Sickle Cell Disease Sickle Cell Disease Association
Speech and Language American Speech-Language-Hearing Association
Metropolitan Stuttering Support Group
Spina Bifida Spina Bifida Association Spinal Cord Injury
National Spinal Cord Injury Association The National Spinal Cord Injury Association is the nation's oldest and largest civilian organization dedicated to helping the hundreds of thousands of Americans suffering the catastrophic results of spinal cord injury and disease.
Stroke
American Heart Association
American Stroke Foundation
Tourette Syndrome Tourette Syndrome Association Tourette Syndrome "Plus" You will find articles and files relating to school-related issues in the Education section of the site. And don't miss the general Behavior section, where you'll find topics of concerns to parents and teachers of children with these childhood-onset conditions or disorders. Traumatic Brain Injury Brain Injury Association of Maryland Traumatic Brain Injury Lawyer They offer a list of Brain Injury Associations for the entire state. Tuberous Sclerosis Tuberous Sclerosis Alliance This nonprofit organization provides support to families who are affected by Tuberous Sclerosis. |